Archive for the ‘SMA Events’ Category
Family plans Sept. 20 fundraiser at Phillies game in Baby Zane’s memory
After the death of their daughter, Zane, last year, Hillary and Keith Schmid vowed to spread the word about the disease that took her life. After fighting 5½ months, Zane succumbed to respiratory failure from spinal muscular atrophy (SMA) on June 18, 2009. Zane was diagnosed with SMA Type 1 when she was less than [...]
In: SMA Events, SMA Fund News, USA, USA · Tagged with: fundraiser at Phillies game, Hillary, Keith Schmid, sma, Sweet baby Zane, Zane Schmid
Helping hand for MontroseAccess
Tristram Peters is throwing his support behind the MontroseAccess inaugural Walk With Me fundraiser launched at the organisation’s Corinda centre last week. The September 12 event, in partnership with Ability First Australia, aims to raise $50,000 to help provide support services for people with disabilities in Queensland. Mr Peters has been receiving support from MontroseAccess [...]
In: Australia, SMA Events · Tagged with: MontroseAccess, sma au, SMA Australia, Tristram Peters
2nd Annual Zane’s Run! – A Race to the Cure for Spinal Muscular Atrophy
Hi Friends It is time for the 2nd Annual Zane’s Run! With the help of some friends, www.zanesrun.com is up & running. You may visit the site to see pictures from last year, register for this year’s event, and view details about the event. Now, we all know that the Phillies game is Monday, Sept. [...]
In: SMA Events, USA · Tagged with: baby zane, School in Malvern, sma cure
Fundraiser set for funeral of Murrieta girl who lost battle with rare illness
FUNDRAISER: The family of Aubrey Gross, a 6-month-old who died of a rare disorder, is raising money for funeral costs. WHEN: 2 p.m. Sunday WHERE: Aloha J’s restaurant, 27494 Ynez Road, Temecula DETAILS: The event will feature live music and costs a $5 donation. A weekend benefit in Temecula was planned to raise money so [...]
In: SMA Events, SMA Fund News, USA, USA
SMA Event During Wings over Camarillo Air Show
Dear SMA parents, Brenda Barberena & I are having a SMA event during Wings over Camarillo Air Show on Aug 21-22 in CA, from 9am to 5pm. More than 10,000 people are expected. We will display pictures of SMA babies & angels during the two day event. We believe that is important to put a [...]
In: SMA Events, USA · Tagged with: SMA event