SMA Event During Wings over Camarillo Air Show

Dear SMA parents,

Brenda Barberena & I are having a SMA event during Wings over Camarillo Air Show on Aug 21-22 in CA, from 9am to 5pm. More than 10,000 people are expected.

We will display pictures of SMA babies & angels during the two day event. We believe that is important to put a face to the disease, and help people to understand it and know it better, as well as associate the words SMA Spinal Muscular Atrophy with the reality that actual children go thru.

Please send the pictures at maureen_pbn@yahoo.com & include Birthdate and Angel Date for the ones who are no longer with us.

Thank you so much,

Maureen

Posted on May 26, 2010 at 7:20 am by Jumaana Syed Ali · Permalink
In: SMA Events, USA · Tagged with: SMA event

3 Responses

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Written by Andrea Lack
on May 26, 2010 at 11:41 pm
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Hey, that is such a good idea….I will send Alex’s photos ASAP … BTW Syed………….YOU ARE THE BEST:))) YOU RIGHT< I LOVE IT ))
Written by Jumaana Syed Ali
on May 27, 2010 at 3:14 am
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Thank you so much Andrea . I hope this could help people interact easily & know about the latest happenings on SMA Events, SMA Research News or any latest news only related to SMA.
Written by Ron Tedwater
on November 21, 2010 at 1:26 am
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Really nice post,thank you