Archive for May, 2010
Gwendolyn Strong Foundation Awards $135,000, Partners On Promising Gene Therapy Program
The Gwendolyn Strong Foundation, a Santa Barbara, CA based nonprofit organization striving to increase awareness of Spinal Muscular Atrophy (SMA), the #1 genetic killer of young children, and accelerate cure focused SMA research, has awarded $135,000 to two promising research programs: $75,000 to FightSMA for their SMA gene therapy partnership with Dr. Brian Kaspar at [...]
In: SMA Fund News, USA · Tagged with: Awards, FUNDS, GSF, Gwendolyn Strong Foundation, sma
Families of SMA – South Jersey/Delaware Chapter Helps “Zumba Away SMA”
People Come Together to Exercise in Support of Finding a Treatment and a Cure for Spinal Muscular Atrophy On Saturday, April 17, 2010, members and non-members alike from Gold’s Gym in Dover, DE came together in support of Families of SMA. Jessica Moyer, President of the Families of SMA – South Jersey/Delaware Chapter, hosted their [...]
In: SMA Fund News, USA
Hero Central: Volunteers Build A Ramp for Molly
LYNDONVILLE, NY – For 2-year-old Molly, the finished product is more than just a wheelchair ramp. It’s freedom. “Oh this is wonderful. It’s really given Molly a sense of independence. She’ll be able to get her wheelchair out and chase around the other kids,” said Jennifer Terry, Molly’s mom. Molly suffers from spinal muscular atrophy [...]
$10 Jet Express tickets to Put-in-Bay – All proceeds donated to Spinal Muscular Atrophy
PORT CLINTON, Ohio (WUPW) – Pepsi, Jet Express, and FOX Toledo are offering discounted tickets to Put-in Bay to help families affected with Spinal Muscular Atrophy (SMA) . On June 9 at 8am come to the Jet Express Box Office to buy a $10 Jet Express ticket to Put-in-Bay. 600 tickets are available. All proceeds [...]
In: SMA Fund News, USA · Tagged with: donation, SMA Fund News, ticket
Spinal Muscular Atrophy Researchers will Participate in a Special Session on Drug Discovery to be Featured at the 14th Annual SMA Research Group Meeting
Families of SMA has organized a special session, new for 2010, at the 14th Annual SMA Research Group Meeting focusing on the required steps to progress a drug candidate from the laboratory bench to human clinical trials. The 2010 Meeting will be held in Santa Clara, CA from June 24th to 26th. Over 200 leading [...]
In: SMA Research News · Tagged with: research, sma, spinal muscular atrophy
Funding Announced for Next Stage of Pre-symptomatic Trial
FightSMA is excited and proud to announce that it will be administering a $200,000 award to Dr. Kathryn Swoboda’s lab at the University of Utah focused on pre-symptomatic clinical trial for spinal muscular atrophy (SMA) patients. This award builds upon the FightSMA history of commitment to Dr. Swoboda and her dedicated team and this cornerstone [...]
In: SMA Research News · Tagged with: fightsma, research, spinal muscular atrophy, Stop SMA
SMA Event During Wings over Camarillo Air Show
Dear SMA parents, Brenda Barberena & I are having a SMA event during Wings over Camarillo Air Show on Aug 21-22 in CA, from 9am to 5pm. More than 10,000 people are expected. We will display pictures of SMA babies & angels during the two day event. We believe that is important to put a [...]
In: SMA Events, USA · Tagged with: SMA event